
Outline
Week One: Foundational Concepts in Disability & Policy |
Overview
The purpose of this module is to create a shared understanding and language as related to disability and policy for this course. You can expect to learn about the socio-cultural background of disability in the United States and how the United States policy cycle functions. |
Objectives
|
Content
|
Readings
Education Deans for Justice and Equity. (2017, January). Public education, democracy, and the role of the federal government: A declaration of principles. National Education Policy Center. https://nepc.colorado.edu/publication/deans-declaration-of-principles Zaks, Z. (2024). Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future. Disability & Society, 39(12), 3233-3260. https://doi.org/10.1080/09687599.2023.2255926 |
Presentations
|
Suggested Activities
|
Additional Resources
|
References
|
Readings
Presentations
References
Americans with Disabilities Act. Pub. L. No. 110-325, 122 Stat. 3555, 3553 (2023). https://www.govinfo.gov/app/details/USCODE-2023-title42/USCODE-2023-title42-chap126-sec12102
American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). https://apastyle.apa.org/products/publication-manual-7th-edition
Alder, J. H., & Walker, C. J. (2020). Delegation and time. Iowa Law Review, 105, 1931-1993. https://doi.org/10.2139/ssrn.3423062
Altman, B. M. (2001). Disability definitions, models, classification schemes, and applications. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 97-122). Sage. https://doi.org/10.4135/978141297625.n4
APA Style. (2024, October). Disability. APA Style, American Psychological Association. https://apastyle.apa.org/style-grammar-guidelines/bias-free-language/disability#:~:text=Avoid%20language%20that%20uses%20pictorial,AIDS%E2%80%9D%20or%20%E2%80%9Cperson%20with%20a
Bagenstos, S. R. (2009). Law and the contradictions of the disability rights movement. Yale University Press. https://doi.org/10.1080/019476410033800328
Bailey, D. B., Jr., McWilliam, R. A., Aytch Darkes, L., Hebbler, K., Simeonsson, R. J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64(3), 313-328. https://doi.org/10.1177/001440299806400302
Barnes, C., & Mercer, G. (2003). Disability. Polity.
Baynton, D. C. (2001). Disability and the justification of inequality in American history. In P. K. Longmore, & L. Umansky (Eds.), The new disability history: American perspectives (pp. 31-57). New York University Press.
Ben-Moshe, L. (2020). Decarcerating disability: Deinstitutionalization and prison abolition. University of Minnesota Press.
Belt, R. (2022). Abelism. Center for Antiracist Research, Boston University. https://www.bu.edu/antiracism-center/files/2022/06/Ableism.pdf
Britannica. (2025, May 2). Ableism. https://www.britannica.com/topic/ableism
Bruder, M. B. (2010). Early childhood intervention: A promise to children and families for their future. Exceptional Children, 76(3), https://doi.org/10.1177/00144029100760036
Burkhauser, R. V., & Daly, M. C. (2011). The rise and fall of the disability employment gap: A comparative analysis of labor markets. Cambridge University Press.
Centers for Disease Control and Prevention. (2024, July 16). CDC data shows over 70 million U.S. adults reported having a disability [press release]. https://www.cdc.gov/media/releases/2024/s0716-Adult-disability.html#print
Centers for Disease Control and Prevention. (2025a, April 2). Disability and health overview. https://www.cdc.gov/disability-and-health/about/?CDC_AAref_Val=https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html
Centers for Disease Control and Prevention. (2025b, April 11). Disability, health, and well-being. https://www.cdc.gov/disability-and-health/health-well-being/index.html
Crenshaw, K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167. https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8
Conrad, P. (2007). The medicalization of society: On the transformation of human conditions into treatable disorders. Johns Hopkins University Press.
Congressional Budget Office. (n.d.). Processes. https://www.cbo.gov/about/processes
Congressional Research Service. (2011). A federal sunset commission: Review of proposals and actions (CRS Report no. RL34551).
Cook, G. C., & Odom, S. L. (2013). Evidence-based practices and implementation science in special education. Exceptional Children, 79(3). https://doi.org/10.1177/00144291307900201
Degener, T. (2017). A new human rights model of disability. In V. Della Fina, R. Cera, & G. Palmisano (Eds.), The united nations convention on the rights of persons with disabilities: A commentary (pp. 41-59). Springer Nature. https://www.doi.org/10.1007/978-3-319-43790-3_2
Doucet, F., & Tudge, J. (2007). Co-constructing the transition to school: Reframing the novice versus expert roles of children, parents, and teachers from a cultural perspective. In R. C. Pianta, M. J. Cox, & K .L. Snow (Eds.), School readiness and the transition to kindergarten in the era of accountability (pp. 307-328). Paul H. Brookes Publishing Co. https://www.academia.edu/67285601/Co_Constructing_the_transition_to_school_Reframing_the_novice_versus_expert_roles_of_children_parents_and_teachers_from_a_cultural_perspective
Duggan, M., & Imberman, S. A. (2009). Why are the disability rolls skyrocketing? The contribution of population characteristics, economic conditions, and program generosity. In D. M. Cutler, & D. A. Wise (Eds.), Health at older ages: The causes and consequences of declining disability among the elderly (pp. 337-379). University of Chicago Press.
Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636
Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10(2), 350–355. https://doi.org/10.1016/j.dhjo.2016.12.013
Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9(1), 39–46. https://doi.org/10.2322/JVR-1997-9106
Goodley, D. (2014). Dis/ability studies: Theorizing disablism and ableism. Routledge. https://doi.org/10.4324/9780203366974
Gonaver, W. (2019). The peculiar institution and the making of modern psychiatry, 1840–1880. University of North Carolina Press.
Gould, S. J. (1981). The mismeasure of man. W. W. Norton. 20last%2010%20years,disabilities%20into%20competitive%20work%20environments.
Government Accountability Office. (2017). GAO’s congressional protocols (GAO-17-767G). https://www.gao.gov/assets/gao-17-767g.pdf
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants & Young Children, 24(1), 6-28. https://doi.org/10.1097/IYC.0b013e3182002cfe
Hanson, M. J., & Lynch, E. W. (2013). Understanding families: Supportive approaches to diversity, disability, and risk (2nd ed.). Paul H. Brookes Publishing Co.
Hayes, J., & Hannold, E. L. M. (2007). The road to empowerment: A historical perspective on the medicalization of disability. Journal of Health and Human Services Administration, 30(3), 352–377. https://doi.org/10.1177/107937390703000
Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society, 12(3), 325-340. https://doi.org/10.1080.09687599727209
Iezzoni, L. I. (2011). Eliminating health and healthcare disparities among the growing population of people with disabilities. Health Affairs, 30(10), 1947-1954. https://doi.org/10.1377/hlthaff.2011.0613
Justia. (2025). Federal remedial legislation. https://law.justia.com/constitution/us/amendment-15/09-federal-remedial-legislation.html#:~:text=The%20Court%20concluded%20that%20Congress,examiners%20to%20register%20qualified%20voters.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press
Kayess, R. & French, P. (2008). Out of darkness into light? Introducing the convention on the rights of persons with disabilities. Human Rights Law Review, 8(1), 1-34. https://doi.org/10.1093/hrlr/nrgm044
Killion, V. L. (2022). Understanding federal legislation: A section-by-section guide to key legal considerations (CRS Report no. R46484). Congressional Research Service. https://www.congress.gov/crs-product/R46484
Klingner, J. K., Blanchett, W. J., & Harry, B. (2007). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blancher (Eds.), Handbook of developmental disabilities (pp. 55-73). The Guilford Press.
Lalvani, P. (2013). Privilege, compromise, or social justice: Teachers’ conceptualizations of inclusive education. Disability & Society, 28(1), 14-27. https://doi.org/10.1080/09687599.2012.692028
Ladau, E. (2021). Demystifying disability: What to know, what to say, and how to be an ally. Ten Speed Press.
Lewis, T. (2021, January 1). January 2021 working definition of ableism [blog post]. https://www.talilalewis.com/blog/january-2021-working-definition-of-ableism
Lise, J., Pastorino, E., & Pistaferri, L. (2023, November). Revisiting the employment of the Americans with Disabilities Act. Cowles Foundation for Research in Economics, Yale University. https://cowles.yale.edu/sites/default/files/2024-05/Pistaferri-paper_011123.pdf
Lombardo, P. A. (2022). Three generations, no imbeciles: Eugenics, the Supreme Court, and Buck v. Bell (Updated ed.). Johns Hopkins University Press.
McGerr, M. E. (2003). A fierce discontent: The rise and fall of the Progressive movement in America, 1870–1920. Free Press.
National Human Genome Research Institute. (2022, May 18). Eugenics and scientific racism [fact sheet]. https://www.genome.gov/about-genomics/fact-sheets/Eugenics-and-Scientific-Racism
Neumann, P. J., Ganiats, T. G., Russell, L. B., Sanders, G. D., & Siegal, J. E. (2016). Cost-effectiveness in health and medicine. Oxford University Press.
Null, S., & Trent, J. (2004). Mental retardation in America: A historical reader. NYU Press.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
Phillips, K. G., Houtenville, A. J., O’Neill, J., Katze, E. (2019). The effectiveness of employer practices to recruit, hire, and retain employees with disabilities: Supervisors perspectives. Journal of Vocational Rehabilitation, 51(3), 339-353. https://doi.org/10.3233/JVR-191050
Puar, J. K. (2017). The right to maim: Debility, capacity, disability. Duke University Press. https://doi.org/10.1215/9780822372530
Rainey Marquez, J. (2022, February 8). Wrestling with the legacy of eugenics [interview]. Georgia State University Research Magazine. https://news.gsu.edu/research-magazine/wrestling-with-the-legacy-of-eugenics-paul-lombardo
Rosenbaum, P., & Gorter, J. W. (2012). The ‘f-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457-463. https://doi.org/10.1111.j.1365-2214.2011.01338.x
Roulstone, A., & Prideaux, S. (2012). Understanding disability policy. Policy Press. https://doi.org/10.51952/9781447314493
Saturno, J. V. (2023). Introduction to the federal budget process (CRS Report no. R46240). Congressional Research Service. https://www.congress.gov/crs-product/R46240
Schweik, S. M. (2009). The ugly laws: Disability in public. NYU Press. https://www.jstor.org/stable/j.ctt9qgf13
Shakespeare, T. (2006). Disability rights and wrongs. https://doi.org/10.4324/9780203640
Simeonsson, R. J. (2006). Appendix C: Defining and classifying disability in children. In M. J. Field, A. Jette, & L. Martin, Workshop on disability in America: A new look (pp. 67-85). National Academies Press. https://nap.nationalacademies.org/read/11579/chapter/6
Steinfeld, E., & Maisel, J. (2012). Universal design: Creating inclusive environments. Wiley.
Stern, A. M. (2005). Eugenic nation: Faults and frontiers of better breeding in modern America. University of California Press. https://www.jstor.org/stable/10.1525/j.ctt1pn5jp
Stiker, H. (2019). A history of disability. University of Michigan Press.
Stone, D. (1985). The disabled state. Palgrave Macmillan.
Trent, J. W., Jr. (1994). Inventing the feeble mind: A history of mental retardation in the United States.
Turnbull, A. A., Turnbull, H. R., Erwin, E. J., Soodak, L. C., & Shogren, K. A. (2010). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (6th ed.).
UNICEF. (2021). Fact sheet: The world’s nearly 240 million children living with disabilities are being denied basic rights. https://www.unicef.org/press-releases/fact-sheet-worlds-nearly-240-million-children-living-disabilities-are-being-denied
United Nations. (2006, December 12). Convention on the rights of persons with disabilities. Office of the High Commissioner, Human Rights, United Nations. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
U.S. Department of Justice. (2020, February 28). Guide to disability rights laws. Civil Rights Division, U.S. Department of Justice. https://www.ada.gov/resources/disability-rights-guide/
- S. Government Accountability Office. (2025, April 29). Subminimum wage program: Employment outcomes and views of former workers in two states (GAO-25-106471). https://www.gao.gov/products/gao-25-106471
Ware, L. P. (2002). A moral conversation on disability: Risking the personal in educational contexts. Hypatia, 17(3), 143-172. https://org/10.1111.j.1527-2001.2002.tb00945.x
World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. https://cdn.who.int/media/docs/default-source/classification/icf/drafticfpracticalmanual2.pdf?sfvrsn=8a214b01_4&download=true
World Health Organization. (2023, March 7). Disability. https://www.who.int/news-room/fact-sheets/detail/disability-and-health
World Health Organization. (2022). Global report on health equity for persons with disabilities.
https://www.who.int/publications/i/item/9789240063600
Zhang, C. & Bennett, T. (2003). Facilitating the meaningful participation of culturally and linguistically diverse families in the IFSP and IEP process. Focus on Autism and Other Developmental Disabilities, 18(1), 51-59. https://doi.org/10.1177/108835760301800107

Outline
Week One: Foundational Concepts in Disability & Policy |
Overview
The purpose of this module is to create a shared understanding and language as related to disability and policy for this course. You can expect to learn about the socio-cultural background of disability in the United States and how the United States policy cycle functions. |
Objectives
|
Content
|
Readings
Education Deans for Justice and Equity. (2017, January). Public education, democracy, and the role of the federal government: A declaration of principles. National Education Policy Center. https://nepc.colorado.edu/publication/deans-declaration-of-principles Zaks, Z. (2024). Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future. Disability & Society, 39(12), 3233-3260. https://doi.org/10.1080/09687599.2023.2255926 |
Presentations
|
Suggested Activities
|
Additional Resources
|
References
|
Readings
Presentations
References
Americans with Disabilities Act. Pub. L. No. 110-325, 122 Stat. 3555, 3553 (2023). https://www.govinfo.gov/app/details/USCODE-2023-title42/USCODE-2023-title42-chap126-sec12102
American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). https://apastyle.apa.org/products/publication-manual-7th-edition
Alder, J. H., & Walker, C. J. (2020). Delegation and time. Iowa Law Review, 105, 1931-1993. https://doi.org/10.2139/ssrn.3423062
Altman, B. M. (2001). Disability definitions, models, classification schemes, and applications. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 97-122). Sage. https://doi.org/10.4135/978141297625.n4
APA Style. (2024, October). Disability. APA Style, American Psychological Association. https://apastyle.apa.org/style-grammar-guidelines/bias-free-language/disability#:~:text=Avoid%20language%20that%20uses%20pictorial,AIDS%E2%80%9D%20or%20%E2%80%9Cperson%20with%20a
Bagenstos, S. R. (2009). Law and the contradictions of the disability rights movement. Yale University Press. https://doi.org/10.1080/019476410033800328
Bailey, D. B., Jr., McWilliam, R. A., Aytch Darkes, L., Hebbler, K., Simeonsson, R. J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64(3), 313-328. https://doi.org/10.1177/001440299806400302
Barnes, C., & Mercer, G. (2003). Disability. Polity.
Baynton, D. C. (2001). Disability and the justification of inequality in American history. In P. K. Longmore, & L. Umansky (Eds.), The new disability history: American perspectives (pp. 31-57). New York University Press.
Ben-Moshe, L. (2020). Decarcerating disability: Deinstitutionalization and prison abolition. University of Minnesota Press.
Belt, R. (2022). Abelism. Center for Antiracist Research, Boston University. https://www.bu.edu/antiracism-center/files/2022/06/Ableism.pdf
Britannica. (2025, May 2). Ableism. https://www.britannica.com/topic/ableism
Bruder, M. B. (2010). Early childhood intervention: A promise to children and families for their future. Exceptional Children, 76(3), https://doi.org/10.1177/00144029100760036
Burkhauser, R. V., & Daly, M. C. (2011). The rise and fall of the disability employment gap: A comparative analysis of labor markets. Cambridge University Press.
Centers for Disease Control and Prevention. (2024, July 16). CDC data shows over 70 million U.S. adults reported having a disability [press release]. https://www.cdc.gov/media/releases/2024/s0716-Adult-disability.html#print
Centers for Disease Control and Prevention. (2025a, April 2). Disability and health overview. https://www.cdc.gov/disability-and-health/about/?CDC_AAref_Val=https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html
Centers for Disease Control and Prevention. (2025b, April 11). Disability, health, and well-being. https://www.cdc.gov/disability-and-health/health-well-being/index.html
Crenshaw, K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167. https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8
Conrad, P. (2007). The medicalization of society: On the transformation of human conditions into treatable disorders. Johns Hopkins University Press.
Congressional Budget Office. (n.d.). Processes. https://www.cbo.gov/about/processes
Congressional Research Service. (2011). A federal sunset commission: Review of proposals and actions (CRS Report no. RL34551).
Cook, G. C., & Odom, S. L. (2013). Evidence-based practices and implementation science in special education. Exceptional Children, 79(3). https://doi.org/10.1177/00144291307900201
Degener, T. (2017). A new human rights model of disability. In V. Della Fina, R. Cera, & G. Palmisano (Eds.), The united nations convention on the rights of persons with disabilities: A commentary (pp. 41-59). Springer Nature. https://www.doi.org/10.1007/978-3-319-43790-3_2
Doucet, F., & Tudge, J. (2007). Co-constructing the transition to school: Reframing the novice versus expert roles of children, parents, and teachers from a cultural perspective. In R. C. Pianta, M. J. Cox, & K .L. Snow (Eds.), School readiness and the transition to kindergarten in the era of accountability (pp. 307-328). Paul H. Brookes Publishing Co. https://www.academia.edu/67285601/Co_Constructing_the_transition_to_school_Reframing_the_novice_versus_expert_roles_of_children_parents_and_teachers_from_a_cultural_perspective
Duggan, M., & Imberman, S. A. (2009). Why are the disability rolls skyrocketing? The contribution of population characteristics, economic conditions, and program generosity. In D. M. Cutler, & D. A. Wise (Eds.), Health at older ages: The causes and consequences of declining disability among the elderly (pp. 337-379). University of Chicago Press.
Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636
Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10(2), 350–355. https://doi.org/10.1016/j.dhjo.2016.12.013
Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9(1), 39–46. https://doi.org/10.2322/JVR-1997-9106
Goodley, D. (2014). Dis/ability studies: Theorizing disablism and ableism. Routledge. https://doi.org/10.4324/9780203366974
Gonaver, W. (2019). The peculiar institution and the making of modern psychiatry, 1840–1880. University of North Carolina Press.
Gould, S. J. (1981). The mismeasure of man. W. W. Norton. 20last%2010%20years,disabilities%20into%20competitive%20work%20environments.
Government Accountability Office. (2017). GAO’s congressional protocols (GAO-17-767G). https://www.gao.gov/assets/gao-17-767g.pdf
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants & Young Children, 24(1), 6-28. https://doi.org/10.1097/IYC.0b013e3182002cfe
Hanson, M. J., & Lynch, E. W. (2013). Understanding families: Supportive approaches to diversity, disability, and risk (2nd ed.). Paul H. Brookes Publishing Co.
Hayes, J., & Hannold, E. L. M. (2007). The road to empowerment: A historical perspective on the medicalization of disability. Journal of Health and Human Services Administration, 30(3), 352–377. https://doi.org/10.1177/107937390703000
Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society, 12(3), 325-340. https://doi.org/10.1080.09687599727209
Iezzoni, L. I. (2011). Eliminating health and healthcare disparities among the growing population of people with disabilities. Health Affairs, 30(10), 1947-1954. https://doi.org/10.1377/hlthaff.2011.0613
Justia. (2025). Federal remedial legislation. https://law.justia.com/constitution/us/amendment-15/09-federal-remedial-legislation.html#:~:text=The%20Court%20concluded%20that%20Congress,examiners%20to%20register%20qualified%20voters.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press
Kayess, R. & French, P. (2008). Out of darkness into light? Introducing the convention on the rights of persons with disabilities. Human Rights Law Review, 8(1), 1-34. https://doi.org/10.1093/hrlr/nrgm044
Killion, V. L. (2022). Understanding federal legislation: A section-by-section guide to key legal considerations (CRS Report no. R46484). Congressional Research Service. https://www.congress.gov/crs-product/R46484
Klingner, J. K., Blanchett, W. J., & Harry, B. (2007). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blancher (Eds.), Handbook of developmental disabilities (pp. 55-73). The Guilford Press.
Lalvani, P. (2013). Privilege, compromise, or social justice: Teachers’ conceptualizations of inclusive education. Disability & Society, 28(1), 14-27. https://doi.org/10.1080/09687599.2012.692028
Ladau, E. (2021). Demystifying disability: What to know, what to say, and how to be an ally. Ten Speed Press.
Lewis, T. (2021, January 1). January 2021 working definition of ableism [blog post]. https://www.talilalewis.com/blog/january-2021-working-definition-of-ableism
Lise, J., Pastorino, E., & Pistaferri, L. (2023, November). Revisiting the employment of the Americans with Disabilities Act. Cowles Foundation for Research in Economics, Yale University. https://cowles.yale.edu/sites/default/files/2024-05/Pistaferri-paper_011123.pdf
Lombardo, P. A. (2022). Three generations, no imbeciles: Eugenics, the Supreme Court, and Buck v. Bell (Updated ed.). Johns Hopkins University Press.
McGerr, M. E. (2003). A fierce discontent: The rise and fall of the Progressive movement in America, 1870–1920. Free Press.
National Human Genome Research Institute. (2022, May 18). Eugenics and scientific racism [fact sheet]. https://www.genome.gov/about-genomics/fact-sheets/Eugenics-and-Scientific-Racism
Neumann, P. J., Ganiats, T. G., Russell, L. B., Sanders, G. D., & Siegal, J. E. (2016). Cost-effectiveness in health and medicine. Oxford University Press.
Null, S., & Trent, J. (2004). Mental retardation in America: A historical reader. NYU Press.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
Phillips, K. G., Houtenville, A. J., O’Neill, J., Katze, E. (2019). The effectiveness of employer practices to recruit, hire, and retain employees with disabilities: Supervisors perspectives. Journal of Vocational Rehabilitation, 51(3), 339-353. https://doi.org/10.3233/JVR-191050
Puar, J. K. (2017). The right to maim: Debility, capacity, disability. Duke University Press. https://doi.org/10.1215/9780822372530
Rainey Marquez, J. (2022, February 8). Wrestling with the legacy of eugenics [interview]. Georgia State University Research Magazine. https://news.gsu.edu/research-magazine/wrestling-with-the-legacy-of-eugenics-paul-lombardo
Rosenbaum, P., & Gorter, J. W. (2012). The ‘f-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457-463. https://doi.org/10.1111.j.1365-2214.2011.01338.x
Roulstone, A., & Prideaux, S. (2012). Understanding disability policy. Policy Press. https://doi.org/10.51952/9781447314493
Saturno, J. V. (2023). Introduction to the federal budget process (CRS Report no. R46240). Congressional Research Service. https://www.congress.gov/crs-product/R46240
Schweik, S. M. (2009). The ugly laws: Disability in public. NYU Press. https://www.jstor.org/stable/j.ctt9qgf13
Shakespeare, T. (2006). Disability rights and wrongs. https://doi.org/10.4324/9780203640
Simeonsson, R. J. (2006). Appendix C: Defining and classifying disability in children. In M. J. Field, A. Jette, & L. Martin, Workshop on disability in America: A new look (pp. 67-85). National Academies Press. https://nap.nationalacademies.org/read/11579/chapter/6
Steinfeld, E., & Maisel, J. (2012). Universal design: Creating inclusive environments. Wiley.
Stern, A. M. (2005). Eugenic nation: Faults and frontiers of better breeding in modern America. University of California Press. https://www.jstor.org/stable/10.1525/j.ctt1pn5jp
Stiker, H. (2019). A history of disability. University of Michigan Press.
Stone, D. (1985). The disabled state. Palgrave Macmillan.
Trent, J. W., Jr. (1994). Inventing the feeble mind: A history of mental retardation in the United States.
Turnbull, A. A., Turnbull, H. R., Erwin, E. J., Soodak, L. C., & Shogren, K. A. (2010). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (6th ed.).
UNICEF. (2021). Fact sheet: The world’s nearly 240 million children living with disabilities are being denied basic rights. https://www.unicef.org/press-releases/fact-sheet-worlds-nearly-240-million-children-living-disabilities-are-being-denied
United Nations. (2006, December 12). Convention on the rights of persons with disabilities. Office of the High Commissioner, Human Rights, United Nations. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
U.S. Department of Justice. (2020, February 28). Guide to disability rights laws. Civil Rights Division, U.S. Department of Justice. https://www.ada.gov/resources/disability-rights-guide/
- S. Government Accountability Office. (2025, April 29). Subminimum wage program: Employment outcomes and views of former workers in two states (GAO-25-106471). https://www.gao.gov/products/gao-25-106471
Ware, L. P. (2002). A moral conversation on disability: Risking the personal in educational contexts. Hypatia, 17(3), 143-172. https://org/10.1111.j.1527-2001.2002.tb00945.x
World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. https://cdn.who.int/media/docs/default-source/classification/icf/drafticfpracticalmanual2.pdf?sfvrsn=8a214b01_4&download=true
World Health Organization. (2023, March 7). Disability. https://www.who.int/news-room/fact-sheets/detail/disability-and-health
World Health Organization. (2022). Global report on health equity for persons with disabilities.
https://www.who.int/publications/i/item/9789240063600
Zhang, C. & Bennett, T. (2003). Facilitating the meaningful participation of culturally and linguistically diverse families in the IFSP and IEP process. Focus on Autism and Other Developmental Disabilities, 18(1), 51-59. https://doi.org/10.1177/108835760301800107

Outline
Week One: Foundational Concepts in Disability & Policy |
Overview
The purpose of this module is to create a shared understanding and language as related to disability and policy for this course. You can expect to learn about the socio-cultural background of disability in the United States and how the United States policy cycle functions. |
Objectives
|
Content
|
Readings
Education Deans for Justice and Equity. (2017, January). Public education, democracy, and the role of the federal government: A declaration of principles. National Education Policy Center. https://nepc.colorado.edu/publication/deans-declaration-of-principles Zaks, Z. (2024). Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future. Disability & Society, 39(12), 3233-3260. https://doi.org/10.1080/09687599.2023.2255926 |
Presentations
|
Suggested Activities
|
Additional Resources
|
References
|
Readings
Presentations
References
Americans with Disabilities Act. Pub. L. No. 110-325, 122 Stat. 3555, 3553 (2023). https://www.govinfo.gov/app/details/USCODE-2023-title42/USCODE-2023-title42-chap126-sec12102
American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). https://apastyle.apa.org/products/publication-manual-7th-edition
Alder, J. H., & Walker, C. J. (2020). Delegation and time. Iowa Law Review, 105, 1931-1993. https://doi.org/10.2139/ssrn.3423062
Altman, B. M. (2001). Disability definitions, models, classification schemes, and applications. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 97-122). Sage. https://doi.org/10.4135/978141297625.n4
APA Style. (2024, October). Disability. APA Style, American Psychological Association. https://apastyle.apa.org/style-grammar-guidelines/bias-free-language/disability#:~:text=Avoid%20language%20that%20uses%20pictorial,AIDS%E2%80%9D%20or%20%E2%80%9Cperson%20with%20a
Bagenstos, S. R. (2009). Law and the contradictions of the disability rights movement. Yale University Press. https://doi.org/10.1080/019476410033800328
Bailey, D. B., Jr., McWilliam, R. A., Aytch Darkes, L., Hebbler, K., Simeonsson, R. J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64(3), 313-328. https://doi.org/10.1177/001440299806400302
Barnes, C., & Mercer, G. (2003). Disability. Polity.
Baynton, D. C. (2001). Disability and the justification of inequality in American history. In P. K. Longmore, & L. Umansky (Eds.), The new disability history: American perspectives (pp. 31-57). New York University Press.
Ben-Moshe, L. (2020). Decarcerating disability: Deinstitutionalization and prison abolition. University of Minnesota Press.
Belt, R. (2022). Abelism. Center for Antiracist Research, Boston University. https://www.bu.edu/antiracism-center/files/2022/06/Ableism.pdf
Britannica. (2025, May 2). Ableism. https://www.britannica.com/topic/ableism
Bruder, M. B. (2010). Early childhood intervention: A promise to children and families for their future. Exceptional Children, 76(3), https://doi.org/10.1177/00144029100760036
Burkhauser, R. V., & Daly, M. C. (2011). The rise and fall of the disability employment gap: A comparative analysis of labor markets. Cambridge University Press.
Centers for Disease Control and Prevention. (2024, July 16). CDC data shows over 70 million U.S. adults reported having a disability [press release]. https://www.cdc.gov/media/releases/2024/s0716-Adult-disability.html#print
Centers for Disease Control and Prevention. (2025a, April 2). Disability and health overview. https://www.cdc.gov/disability-and-health/about/?CDC_AAref_Val=https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html
Centers for Disease Control and Prevention. (2025b, April 11). Disability, health, and well-being. https://www.cdc.gov/disability-and-health/health-well-being/index.html
Crenshaw, K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167. https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8
Conrad, P. (2007). The medicalization of society: On the transformation of human conditions into treatable disorders. Johns Hopkins University Press.
Congressional Budget Office. (n.d.). Processes. https://www.cbo.gov/about/processes
Congressional Research Service. (2011). A federal sunset commission: Review of proposals and actions (CRS Report no. RL34551).
Cook, G. C., & Odom, S. L. (2013). Evidence-based practices and implementation science in special education. Exceptional Children, 79(3). https://doi.org/10.1177/00144291307900201
Degener, T. (2017). A new human rights model of disability. In V. Della Fina, R. Cera, & G. Palmisano (Eds.), The united nations convention on the rights of persons with disabilities: A commentary (pp. 41-59). Springer Nature. https://www.doi.org/10.1007/978-3-319-43790-3_2
Doucet, F., & Tudge, J. (2007). Co-constructing the transition to school: Reframing the novice versus expert roles of children, parents, and teachers from a cultural perspective. In R. C. Pianta, M. J. Cox, & K .L. Snow (Eds.), School readiness and the transition to kindergarten in the era of accountability (pp. 307-328). Paul H. Brookes Publishing Co. https://www.academia.edu/67285601/Co_Constructing_the_transition_to_school_Reframing_the_novice_versus_expert_roles_of_children_parents_and_teachers_from_a_cultural_perspective
Duggan, M., & Imberman, S. A. (2009). Why are the disability rolls skyrocketing? The contribution of population characteristics, economic conditions, and program generosity. In D. M. Cutler, & D. A. Wise (Eds.), Health at older ages: The causes and consequences of declining disability among the elderly (pp. 337-379). University of Chicago Press.
Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636
Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10(2), 350–355. https://doi.org/10.1016/j.dhjo.2016.12.013
Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9(1), 39–46. https://doi.org/10.2322/JVR-1997-9106
Goodley, D. (2014). Dis/ability studies: Theorizing disablism and ableism. Routledge. https://doi.org/10.4324/9780203366974
Gonaver, W. (2019). The peculiar institution and the making of modern psychiatry, 1840–1880. University of North Carolina Press.
Gould, S. J. (1981). The mismeasure of man. W. W. Norton. 20last%2010%20years,disabilities%20into%20competitive%20work%20environments.
Government Accountability Office. (2017). GAO’s congressional protocols (GAO-17-767G). https://www.gao.gov/assets/gao-17-767g.pdf
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants & Young Children, 24(1), 6-28. https://doi.org/10.1097/IYC.0b013e3182002cfe
Hanson, M. J., & Lynch, E. W. (2013). Understanding families: Supportive approaches to diversity, disability, and risk (2nd ed.). Paul H. Brookes Publishing Co.
Hayes, J., & Hannold, E. L. M. (2007). The road to empowerment: A historical perspective on the medicalization of disability. Journal of Health and Human Services Administration, 30(3), 352–377. https://doi.org/10.1177/107937390703000
Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society, 12(3), 325-340. https://doi.org/10.1080.09687599727209
Iezzoni, L. I. (2011). Eliminating health and healthcare disparities among the growing population of people with disabilities. Health Affairs, 30(10), 1947-1954. https://doi.org/10.1377/hlthaff.2011.0613
Justia. (2025). Federal remedial legislation. https://law.justia.com/constitution/us/amendment-15/09-federal-remedial-legislation.html#:~:text=The%20Court%20concluded%20that%20Congress,examiners%20to%20register%20qualified%20voters.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press
Kayess, R. & French, P. (2008). Out of darkness into light? Introducing the convention on the rights of persons with disabilities. Human Rights Law Review, 8(1), 1-34. https://doi.org/10.1093/hrlr/nrgm044
Killion, V. L. (2022). Understanding federal legislation: A section-by-section guide to key legal considerations (CRS Report no. R46484). Congressional Research Service. https://www.congress.gov/crs-product/R46484
Klingner, J. K., Blanchett, W. J., & Harry, B. (2007). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blancher (Eds.), Handbook of developmental disabilities (pp. 55-73). The Guilford Press.
Lalvani, P. (2013). Privilege, compromise, or social justice: Teachers’ conceptualizations of inclusive education. Disability & Society, 28(1), 14-27. https://doi.org/10.1080/09687599.2012.692028
Ladau, E. (2021). Demystifying disability: What to know, what to say, and how to be an ally. Ten Speed Press.
Lewis, T. (2021, January 1). January 2021 working definition of ableism [blog post]. https://www.talilalewis.com/blog/january-2021-working-definition-of-ableism
Lise, J., Pastorino, E., & Pistaferri, L. (2023, November). Revisiting the employment of the Americans with Disabilities Act. Cowles Foundation for Research in Economics, Yale University. https://cowles.yale.edu/sites/default/files/2024-05/Pistaferri-paper_011123.pdf
Lombardo, P. A. (2022). Three generations, no imbeciles: Eugenics, the Supreme Court, and Buck v. Bell (Updated ed.). Johns Hopkins University Press.
McGerr, M. E. (2003). A fierce discontent: The rise and fall of the Progressive movement in America, 1870–1920. Free Press.
National Human Genome Research Institute. (2022, May 18). Eugenics and scientific racism [fact sheet]. https://www.genome.gov/about-genomics/fact-sheets/Eugenics-and-Scientific-Racism
Neumann, P. J., Ganiats, T. G., Russell, L. B., Sanders, G. D., & Siegal, J. E. (2016). Cost-effectiveness in health and medicine. Oxford University Press.
Null, S., & Trent, J. (2004). Mental retardation in America: A historical reader. NYU Press.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
Phillips, K. G., Houtenville, A. J., O’Neill, J., Katze, E. (2019). The effectiveness of employer practices to recruit, hire, and retain employees with disabilities: Supervisors perspectives. Journal of Vocational Rehabilitation, 51(3), 339-353. https://doi.org/10.3233/JVR-191050
Puar, J. K. (2017). The right to maim: Debility, capacity, disability. Duke University Press. https://doi.org/10.1215/9780822372530
Rainey Marquez, J. (2022, February 8). Wrestling with the legacy of eugenics [interview]. Georgia State University Research Magazine. https://news.gsu.edu/research-magazine/wrestling-with-the-legacy-of-eugenics-paul-lombardo
Rosenbaum, P., & Gorter, J. W. (2012). The ‘f-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457-463. https://doi.org/10.1111.j.1365-2214.2011.01338.x
Roulstone, A., & Prideaux, S. (2012). Understanding disability policy. Policy Press. https://doi.org/10.51952/9781447314493
Saturno, J. V. (2023). Introduction to the federal budget process (CRS Report no. R46240). Congressional Research Service. https://www.congress.gov/crs-product/R46240
Schweik, S. M. (2009). The ugly laws: Disability in public. NYU Press. https://www.jstor.org/stable/j.ctt9qgf13
Shakespeare, T. (2006). Disability rights and wrongs. https://doi.org/10.4324/9780203640
Simeonsson, R. J. (2006). Appendix C: Defining and classifying disability in children. In M. J. Field, A. Jette, & L. Martin, Workshop on disability in America: A new look (pp. 67-85). National Academies Press. https://nap.nationalacademies.org/read/11579/chapter/6
Steinfeld, E., & Maisel, J. (2012). Universal design: Creating inclusive environments. Wiley.
Stern, A. M. (2005). Eugenic nation: Faults and frontiers of better breeding in modern America. University of California Press. https://www.jstor.org/stable/10.1525/j.ctt1pn5jp
Stiker, H. (2019). A history of disability. University of Michigan Press.
Stone, D. (1985). The disabled state. Palgrave Macmillan.
Trent, J. W., Jr. (1994). Inventing the feeble mind: A history of mental retardation in the United States.
Turnbull, A. A., Turnbull, H. R., Erwin, E. J., Soodak, L. C., & Shogren, K. A. (2010). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (6th ed.).
UNICEF. (2021). Fact sheet: The world’s nearly 240 million children living with disabilities are being denied basic rights. https://www.unicef.org/press-releases/fact-sheet-worlds-nearly-240-million-children-living-disabilities-are-being-denied
United Nations. (2006, December 12). Convention on the rights of persons with disabilities. Office of the High Commissioner, Human Rights, United Nations. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
U.S. Department of Justice. (2020, February 28). Guide to disability rights laws. Civil Rights Division, U.S. Department of Justice. https://www.ada.gov/resources/disability-rights-guide/
- S. Government Accountability Office. (2025, April 29). Subminimum wage program: Employment outcomes and views of former workers in two states (GAO-25-106471). https://www.gao.gov/products/gao-25-106471
Ware, L. P. (2002). A moral conversation on disability: Risking the personal in educational contexts. Hypatia, 17(3), 143-172. https://org/10.1111.j.1527-2001.2002.tb00945.x
World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. https://cdn.who.int/media/docs/default-source/classification/icf/drafticfpracticalmanual2.pdf?sfvrsn=8a214b01_4&download=true
World Health Organization. (2023, March 7). Disability. https://www.who.int/news-room/fact-sheets/detail/disability-and-health
World Health Organization. (2022). Global report on health equity for persons with disabilities.
https://www.who.int/publications/i/item/9789240063600
Zhang, C. & Bennett, T. (2003). Facilitating the meaningful participation of culturally and linguistically diverse families in the IFSP and IEP process. Focus on Autism and Other Developmental Disabilities, 18(1), 51-59. https://doi.org/10.1177/108835760301800107

Outline
Week One: Foundational Concepts in Disability & Policy |
Overview
The purpose of this module is to create a shared understanding and language as related to disability and policy for this course. You can expect to learn about the socio-cultural background of disability in the United States and how the United States policy cycle functions. |
Objectives
|
Content
|
Readings
Education Deans for Justice and Equity. (2017, January). Public education, democracy, and the role of the federal government: A declaration of principles. National Education Policy Center. https://nepc.colorado.edu/publication/deans-declaration-of-principles Zaks, Z. (2024). Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future. Disability & Society, 39(12), 3233-3260. https://doi.org/10.1080/09687599.2023.2255926 |
Presentations
|
Suggested Activities
|
Additional Resources
|
References
|
Readings
Presentations
References
Americans with Disabilities Act. Pub. L. No. 110-325, 122 Stat. 3555, 3553 (2023). https://www.govinfo.gov/app/details/USCODE-2023-title42/USCODE-2023-title42-chap126-sec12102
American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). https://apastyle.apa.org/products/publication-manual-7th-edition
Alder, J. H., & Walker, C. J. (2020). Delegation and time. Iowa Law Review, 105, 1931-1993. https://doi.org/10.2139/ssrn.3423062
Altman, B. M. (2001). Disability definitions, models, classification schemes, and applications. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 97-122). Sage. https://doi.org/10.4135/978141297625.n4
APA Style. (2024, October). Disability. APA Style, American Psychological Association. https://apastyle.apa.org/style-grammar-guidelines/bias-free-language/disability#:~:text=Avoid%20language%20that%20uses%20pictorial,AIDS%E2%80%9D%20or%20%E2%80%9Cperson%20with%20a
Bagenstos, S. R. (2009). Law and the contradictions of the disability rights movement. Yale University Press. https://doi.org/10.1080/019476410033800328
Bailey, D. B., Jr., McWilliam, R. A., Aytch Darkes, L., Hebbler, K., Simeonsson, R. J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64(3), 313-328. https://doi.org/10.1177/001440299806400302
Barnes, C., & Mercer, G. (2003). Disability. Polity.
Baynton, D. C. (2001). Disability and the justification of inequality in American history. In P. K. Longmore, & L. Umansky (Eds.), The new disability history: American perspectives (pp. 31-57). New York University Press.
Ben-Moshe, L. (2020). Decarcerating disability: Deinstitutionalization and prison abolition. University of Minnesota Press.
Belt, R. (2022). Abelism. Center for Antiracist Research, Boston University. https://www.bu.edu/antiracism-center/files/2022/06/Ableism.pdf
Britannica. (2025, May 2). Ableism. https://www.britannica.com/topic/ableism
Bruder, M. B. (2010). Early childhood intervention: A promise to children and families for their future. Exceptional Children, 76(3), https://doi.org/10.1177/00144029100760036
Burkhauser, R. V., & Daly, M. C. (2011). The rise and fall of the disability employment gap: A comparative analysis of labor markets. Cambridge University Press.
Centers for Disease Control and Prevention. (2024, July 16). CDC data shows over 70 million U.S. adults reported having a disability [press release]. https://www.cdc.gov/media/releases/2024/s0716-Adult-disability.html#print
Centers for Disease Control and Prevention. (2025a, April 2). Disability and health overview. https://www.cdc.gov/disability-and-health/about/?CDC_AAref_Val=https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html
Centers for Disease Control and Prevention. (2025b, April 11). Disability, health, and well-being. https://www.cdc.gov/disability-and-health/health-well-being/index.html
Crenshaw, K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167. https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8
Conrad, P. (2007). The medicalization of society: On the transformation of human conditions into treatable disorders. Johns Hopkins University Press.
Congressional Budget Office. (n.d.). Processes. https://www.cbo.gov/about/processes
Congressional Research Service. (2011). A federal sunset commission: Review of proposals and actions (CRS Report no. RL34551).
Cook, G. C., & Odom, S. L. (2013). Evidence-based practices and implementation science in special education. Exceptional Children, 79(3). https://doi.org/10.1177/00144291307900201
Degener, T. (2017). A new human rights model of disability. In V. Della Fina, R. Cera, & G. Palmisano (Eds.), The united nations convention on the rights of persons with disabilities: A commentary (pp. 41-59). Springer Nature. https://www.doi.org/10.1007/978-3-319-43790-3_2
Doucet, F., & Tudge, J. (2007). Co-constructing the transition to school: Reframing the novice versus expert roles of children, parents, and teachers from a cultural perspective. In R. C. Pianta, M. J. Cox, & K .L. Snow (Eds.), School readiness and the transition to kindergarten in the era of accountability (pp. 307-328). Paul H. Brookes Publishing Co. https://www.academia.edu/67285601/Co_Constructing_the_transition_to_school_Reframing_the_novice_versus_expert_roles_of_children_parents_and_teachers_from_a_cultural_perspective
Duggan, M., & Imberman, S. A. (2009). Why are the disability rolls skyrocketing? The contribution of population characteristics, economic conditions, and program generosity. In D. M. Cutler, & D. A. Wise (Eds.), Health at older ages: The causes and consequences of declining disability among the elderly (pp. 337-379). University of Chicago Press.
Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636
Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10(2), 350–355. https://doi.org/10.1016/j.dhjo.2016.12.013
Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9(1), 39–46. https://doi.org/10.2322/JVR-1997-9106
Goodley, D. (2014). Dis/ability studies: Theorizing disablism and ableism. Routledge. https://doi.org/10.4324/9780203366974
Gonaver, W. (2019). The peculiar institution and the making of modern psychiatry, 1840–1880. University of North Carolina Press.
Gould, S. J. (1981). The mismeasure of man. W. W. Norton. 20last%2010%20years,disabilities%20into%20competitive%20work%20environments.
Government Accountability Office. (2017). GAO’s congressional protocols (GAO-17-767G). https://www.gao.gov/assets/gao-17-767g.pdf
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants & Young Children, 24(1), 6-28. https://doi.org/10.1097/IYC.0b013e3182002cfe
Hanson, M. J., & Lynch, E. W. (2013). Understanding families: Supportive approaches to diversity, disability, and risk (2nd ed.). Paul H. Brookes Publishing Co.
Hayes, J., & Hannold, E. L. M. (2007). The road to empowerment: A historical perspective on the medicalization of disability. Journal of Health and Human Services Administration, 30(3), 352–377. https://doi.org/10.1177/107937390703000
Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society, 12(3), 325-340. https://doi.org/10.1080.09687599727209
Iezzoni, L. I. (2011). Eliminating health and healthcare disparities among the growing population of people with disabilities. Health Affairs, 30(10), 1947-1954. https://doi.org/10.1377/hlthaff.2011.0613
Justia. (2025). Federal remedial legislation. https://law.justia.com/constitution/us/amendment-15/09-federal-remedial-legislation.html#:~:text=The%20Court%20concluded%20that%20Congress,examiners%20to%20register%20qualified%20voters.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press
Kayess, R. & French, P. (2008). Out of darkness into light? Introducing the convention on the rights of persons with disabilities. Human Rights Law Review, 8(1), 1-34. https://doi.org/10.1093/hrlr/nrgm044
Killion, V. L. (2022). Understanding federal legislation: A section-by-section guide to key legal considerations (CRS Report no. R46484). Congressional Research Service. https://www.congress.gov/crs-product/R46484
Klingner, J. K., Blanchett, W. J., & Harry, B. (2007). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blancher (Eds.), Handbook of developmental disabilities (pp. 55-73). The Guilford Press.
Lalvani, P. (2013). Privilege, compromise, or social justice: Teachers’ conceptualizations of inclusive education. Disability & Society, 28(1), 14-27. https://doi.org/10.1080/09687599.2012.692028
Ladau, E. (2021). Demystifying disability: What to know, what to say, and how to be an ally. Ten Speed Press.
Lewis, T. (2021, January 1). January 2021 working definition of ableism [blog post]. https://www.talilalewis.com/blog/january-2021-working-definition-of-ableism
Lise, J., Pastorino, E., & Pistaferri, L. (2023, November). Revisiting the employment of the Americans with Disabilities Act. Cowles Foundation for Research in Economics, Yale University. https://cowles.yale.edu/sites/default/files/2024-05/Pistaferri-paper_011123.pdf
Lombardo, P. A. (2022). Three generations, no imbeciles: Eugenics, the Supreme Court, and Buck v. Bell (Updated ed.). Johns Hopkins University Press.
McGerr, M. E. (2003). A fierce discontent: The rise and fall of the Progressive movement in America, 1870–1920. Free Press.
National Human Genome Research Institute. (2022, May 18). Eugenics and scientific racism [fact sheet]. https://www.genome.gov/about-genomics/fact-sheets/Eugenics-and-Scientific-Racism
Neumann, P. J., Ganiats, T. G., Russell, L. B., Sanders, G. D., & Siegal, J. E. (2016). Cost-effectiveness in health and medicine. Oxford University Press.
Null, S., & Trent, J. (2004). Mental retardation in America: A historical reader. NYU Press.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
Phillips, K. G., Houtenville, A. J., O’Neill, J., Katze, E. (2019). The effectiveness of employer practices to recruit, hire, and retain employees with disabilities: Supervisors perspectives. Journal of Vocational Rehabilitation, 51(3), 339-353. https://doi.org/10.3233/JVR-191050
Puar, J. K. (2017). The right to maim: Debility, capacity, disability. Duke University Press. https://doi.org/10.1215/9780822372530
Rainey Marquez, J. (2022, February 8). Wrestling with the legacy of eugenics [interview]. Georgia State University Research Magazine. https://news.gsu.edu/research-magazine/wrestling-with-the-legacy-of-eugenics-paul-lombardo
Rosenbaum, P., & Gorter, J. W. (2012). The ‘f-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457-463. https://doi.org/10.1111.j.1365-2214.2011.01338.x
Roulstone, A., & Prideaux, S. (2012). Understanding disability policy. Policy Press. https://doi.org/10.51952/9781447314493
Saturno, J. V. (2023). Introduction to the federal budget process (CRS Report no. R46240). Congressional Research Service. https://www.congress.gov/crs-product/R46240
Schweik, S. M. (2009). The ugly laws: Disability in public. NYU Press. https://www.jstor.org/stable/j.ctt9qgf13
Shakespeare, T. (2006). Disability rights and wrongs. https://doi.org/10.4324/9780203640
Simeonsson, R. J. (2006). Appendix C: Defining and classifying disability in children. In M. J. Field, A. Jette, & L. Martin, Workshop on disability in America: A new look (pp. 67-85). National Academies Press. https://nap.nationalacademies.org/read/11579/chapter/6
Steinfeld, E., & Maisel, J. (2012). Universal design: Creating inclusive environments. Wiley.
Stern, A. M. (2005). Eugenic nation: Faults and frontiers of better breeding in modern America. University of California Press. https://www.jstor.org/stable/10.1525/j.ctt1pn5jp
Stiker, H. (2019). A history of disability. University of Michigan Press.
Stone, D. (1985). The disabled state. Palgrave Macmillan.
Trent, J. W., Jr. (1994). Inventing the feeble mind: A history of mental retardation in the United States.
Turnbull, A. A., Turnbull, H. R., Erwin, E. J., Soodak, L. C., & Shogren, K. A. (2010). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (6th ed.).
UNICEF. (2021). Fact sheet: The world’s nearly 240 million children living with disabilities are being denied basic rights. https://www.unicef.org/press-releases/fact-sheet-worlds-nearly-240-million-children-living-disabilities-are-being-denied
United Nations. (2006, December 12). Convention on the rights of persons with disabilities. Office of the High Commissioner, Human Rights, United Nations. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
U.S. Department of Justice. (2020, February 28). Guide to disability rights laws. Civil Rights Division, U.S. Department of Justice. https://www.ada.gov/resources/disability-rights-guide/
- S. Government Accountability Office. (2025, April 29). Subminimum wage program: Employment outcomes and views of former workers in two states (GAO-25-106471). https://www.gao.gov/products/gao-25-106471
Ware, L. P. (2002). A moral conversation on disability: Risking the personal in educational contexts. Hypatia, 17(3), 143-172. https://org/10.1111.j.1527-2001.2002.tb00945.x
World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. https://cdn.who.int/media/docs/default-source/classification/icf/drafticfpracticalmanual2.pdf?sfvrsn=8a214b01_4&download=true
World Health Organization. (2023, March 7). Disability. https://www.who.int/news-room/fact-sheets/detail/disability-and-health
World Health Organization. (2022). Global report on health equity for persons with disabilities.
https://www.who.int/publications/i/item/9789240063600
Zhang, C. & Bennett, T. (2003). Facilitating the meaningful participation of culturally and linguistically diverse families in the IFSP and IEP process. Focus on Autism and Other Developmental Disabilities, 18(1), 51-59. https://doi.org/10.1177/108835760301800107

Outline
Week One: Foundational Concepts in Disability & Policy |
Overview
The purpose of this module is to create a shared understanding and language as related to disability and policy for this course. You can expect to learn about the socio-cultural background of disability in the United States and how the United States policy cycle functions. |
Objectives
|
Content
|
Readings
Education Deans for Justice and Equity. (2017, January). Public education, democracy, and the role of the federal government: A declaration of principles. National Education Policy Center. https://nepc.colorado.edu/publication/deans-declaration-of-principles Zaks, Z. (2024). Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future. Disability & Society, 39(12), 3233-3260. https://doi.org/10.1080/09687599.2023.2255926 |
Presentations
|
Suggested Activities
|
Additional Resources
|
References
|
Readings
Presentations
References
Americans with Disabilities Act. Pub. L. No. 110-325, 122 Stat. 3555, 3553 (2023). https://www.govinfo.gov/app/details/USCODE-2023-title42/USCODE-2023-title42-chap126-sec12102
American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). https://apastyle.apa.org/products/publication-manual-7th-edition
Alder, J. H., & Walker, C. J. (2020). Delegation and time. Iowa Law Review, 105, 1931-1993. https://doi.org/10.2139/ssrn.3423062
Altman, B. M. (2001). Disability definitions, models, classification schemes, and applications. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 97-122). Sage. https://doi.org/10.4135/978141297625.n4
APA Style. (2024, October). Disability. APA Style, American Psychological Association. https://apastyle.apa.org/style-grammar-guidelines/bias-free-language/disability#:~:text=Avoid%20language%20that%20uses%20pictorial,AIDS%E2%80%9D%20or%20%E2%80%9Cperson%20with%20a
Bagenstos, S. R. (2009). Law and the contradictions of the disability rights movement. Yale University Press. https://doi.org/10.1080/019476410033800328
Bailey, D. B., Jr., McWilliam, R. A., Aytch Darkes, L., Hebbler, K., Simeonsson, R. J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64(3), 313-328. https://doi.org/10.1177/001440299806400302
Barnes, C., & Mercer, G. (2003). Disability. Polity.
Baynton, D. C. (2001). Disability and the justification of inequality in American history. In P. K. Longmore, & L. Umansky (Eds.), The new disability history: American perspectives (pp. 31-57). New York University Press.
Ben-Moshe, L. (2020). Decarcerating disability: Deinstitutionalization and prison abolition. University of Minnesota Press.
Belt, R. (2022). Abelism. Center for Antiracist Research, Boston University. https://www.bu.edu/antiracism-center/files/2022/06/Ableism.pdf
Britannica. (2025, May 2). Ableism. https://www.britannica.com/topic/ableism
Bruder, M. B. (2010). Early childhood intervention: A promise to children and families for their future. Exceptional Children, 76(3), https://doi.org/10.1177/00144029100760036
Burkhauser, R. V., & Daly, M. C. (2011). The rise and fall of the disability employment gap: A comparative analysis of labor markets. Cambridge University Press.
Centers for Disease Control and Prevention. (2024, July 16). CDC data shows over 70 million U.S. adults reported having a disability [press release]. https://www.cdc.gov/media/releases/2024/s0716-Adult-disability.html#print
Centers for Disease Control and Prevention. (2025a, April 2). Disability and health overview. https://www.cdc.gov/disability-and-health/about/?CDC_AAref_Val=https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html
Centers for Disease Control and Prevention. (2025b, April 11). Disability, health, and well-being. https://www.cdc.gov/disability-and-health/health-well-being/index.html
Crenshaw, K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167. https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8
Conrad, P. (2007). The medicalization of society: On the transformation of human conditions into treatable disorders. Johns Hopkins University Press.
Congressional Budget Office. (n.d.). Processes. https://www.cbo.gov/about/processes
Congressional Research Service. (2011). A federal sunset commission: Review of proposals and actions (CRS Report no. RL34551).
Cook, G. C., & Odom, S. L. (2013). Evidence-based practices and implementation science in special education. Exceptional Children, 79(3). https://doi.org/10.1177/00144291307900201
Degener, T. (2017). A new human rights model of disability. In V. Della Fina, R. Cera, & G. Palmisano (Eds.), The united nations convention on the rights of persons with disabilities: A commentary (pp. 41-59). Springer Nature. https://www.doi.org/10.1007/978-3-319-43790-3_2
Doucet, F., & Tudge, J. (2007). Co-constructing the transition to school: Reframing the novice versus expert roles of children, parents, and teachers from a cultural perspective. In R. C. Pianta, M. J. Cox, & K .L. Snow (Eds.), School readiness and the transition to kindergarten in the era of accountability (pp. 307-328). Paul H. Brookes Publishing Co. https://www.academia.edu/67285601/Co_Constructing_the_transition_to_school_Reframing_the_novice_versus_expert_roles_of_children_parents_and_teachers_from_a_cultural_perspective
Duggan, M., & Imberman, S. A. (2009). Why are the disability rolls skyrocketing? The contribution of population characteristics, economic conditions, and program generosity. In D. M. Cutler, & D. A. Wise (Eds.), Health at older ages: The causes and consequences of declining disability among the elderly (pp. 337-379). University of Chicago Press.
Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636
Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10(2), 350–355. https://doi.org/10.1016/j.dhjo.2016.12.013
Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9(1), 39–46. https://doi.org/10.2322/JVR-1997-9106
Goodley, D. (2014). Dis/ability studies: Theorizing disablism and ableism. Routledge. https://doi.org/10.4324/9780203366974
Gonaver, W. (2019). The peculiar institution and the making of modern psychiatry, 1840–1880. University of North Carolina Press.
Gould, S. J. (1981). The mismeasure of man. W. W. Norton. 20last%2010%20years,disabilities%20into%20competitive%20work%20environments.
Government Accountability Office. (2017). GAO’s congressional protocols (GAO-17-767G). https://www.gao.gov/assets/gao-17-767g.pdf
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants & Young Children, 24(1), 6-28. https://doi.org/10.1097/IYC.0b013e3182002cfe
Hanson, M. J., & Lynch, E. W. (2013). Understanding families: Supportive approaches to diversity, disability, and risk (2nd ed.). Paul H. Brookes Publishing Co.
Hayes, J., & Hannold, E. L. M. (2007). The road to empowerment: A historical perspective on the medicalization of disability. Journal of Health and Human Services Administration, 30(3), 352–377. https://doi.org/10.1177/107937390703000
Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society, 12(3), 325-340. https://doi.org/10.1080.09687599727209
Iezzoni, L. I. (2011). Eliminating health and healthcare disparities among the growing population of people with disabilities. Health Affairs, 30(10), 1947-1954. https://doi.org/10.1377/hlthaff.2011.0613
Justia. (2025). Federal remedial legislation. https://law.justia.com/constitution/us/amendment-15/09-federal-remedial-legislation.html#:~:text=The%20Court%20concluded%20that%20Congress,examiners%20to%20register%20qualified%20voters.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press
Kayess, R. & French, P. (2008). Out of darkness into light? Introducing the convention on the rights of persons with disabilities. Human Rights Law Review, 8(1), 1-34. https://doi.org/10.1093/hrlr/nrgm044
Killion, V. L. (2022). Understanding federal legislation: A section-by-section guide to key legal considerations (CRS Report no. R46484). Congressional Research Service. https://www.congress.gov/crs-product/R46484
Klingner, J. K., Blanchett, W. J., & Harry, B. (2007). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blancher (Eds.), Handbook of developmental disabilities (pp. 55-73). The Guilford Press.
Lalvani, P. (2013). Privilege, compromise, or social justice: Teachers’ conceptualizations of inclusive education. Disability & Society, 28(1), 14-27. https://doi.org/10.1080/09687599.2012.692028
Ladau, E. (2021). Demystifying disability: What to know, what to say, and how to be an ally. Ten Speed Press.
Lewis, T. (2021, January 1). January 2021 working definition of ableism [blog post]. https://www.talilalewis.com/blog/january-2021-working-definition-of-ableism
Lise, J., Pastorino, E., & Pistaferri, L. (2023, November). Revisiting the employment of the Americans with Disabilities Act. Cowles Foundation for Research in Economics, Yale University. https://cowles.yale.edu/sites/default/files/2024-05/Pistaferri-paper_011123.pdf
Lombardo, P. A. (2022). Three generations, no imbeciles: Eugenics, the Supreme Court, and Buck v. Bell (Updated ed.). Johns Hopkins University Press.
McGerr, M. E. (2003). A fierce discontent: The rise and fall of the Progressive movement in America, 1870–1920. Free Press.
National Human Genome Research Institute. (2022, May 18). Eugenics and scientific racism [fact sheet]. https://www.genome.gov/about-genomics/fact-sheets/Eugenics-and-Scientific-Racism
Neumann, P. J., Ganiats, T. G., Russell, L. B., Sanders, G. D., & Siegal, J. E. (2016). Cost-effectiveness in health and medicine. Oxford University Press.
Null, S., & Trent, J. (2004). Mental retardation in America: A historical reader. NYU Press.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
Phillips, K. G., Houtenville, A. J., O’Neill, J., Katze, E. (2019). The effectiveness of employer practices to recruit, hire, and retain employees with disabilities: Supervisors perspectives. Journal of Vocational Rehabilitation, 51(3), 339-353. https://doi.org/10.3233/JVR-191050
Puar, J. K. (2017). The right to maim: Debility, capacity, disability. Duke University Press. https://doi.org/10.1215/9780822372530
Rainey Marquez, J. (2022, February 8). Wrestling with the legacy of eugenics [interview]. Georgia State University Research Magazine. https://news.gsu.edu/research-magazine/wrestling-with-the-legacy-of-eugenics-paul-lombardo
Rosenbaum, P., & Gorter, J. W. (2012). The ‘f-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457-463. https://doi.org/10.1111.j.1365-2214.2011.01338.x
Roulstone, A., & Prideaux, S. (2012). Understanding disability policy. Policy Press. https://doi.org/10.51952/9781447314493
Saturno, J. V. (2023). Introduction to the federal budget process (CRS Report no. R46240). Congressional Research Service. https://www.congress.gov/crs-product/R46240
Schweik, S. M. (2009). The ugly laws: Disability in public. NYU Press. https://www.jstor.org/stable/j.ctt9qgf13
Shakespeare, T. (2006). Disability rights and wrongs. https://doi.org/10.4324/9780203640
Simeonsson, R. J. (2006). Appendix C: Defining and classifying disability in children. In M. J. Field, A. Jette, & L. Martin, Workshop on disability in America: A new look (pp. 67-85). National Academies Press. https://nap.nationalacademies.org/read/11579/chapter/6
Steinfeld, E., & Maisel, J. (2012). Universal design: Creating inclusive environments. Wiley.
Stern, A. M. (2005). Eugenic nation: Faults and frontiers of better breeding in modern America. University of California Press. https://www.jstor.org/stable/10.1525/j.ctt1pn5jp
Stiker, H. (2019). A history of disability. University of Michigan Press.
Stone, D. (1985). The disabled state. Palgrave Macmillan.
Trent, J. W., Jr. (1994). Inventing the feeble mind: A history of mental retardation in the United States.
Turnbull, A. A., Turnbull, H. R., Erwin, E. J., Soodak, L. C., & Shogren, K. A. (2010). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (6th ed.).
UNICEF. (2021). Fact sheet: The world’s nearly 240 million children living with disabilities are being denied basic rights. https://www.unicef.org/press-releases/fact-sheet-worlds-nearly-240-million-children-living-disabilities-are-being-denied
United Nations. (2006, December 12). Convention on the rights of persons with disabilities. Office of the High Commissioner, Human Rights, United Nations. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
U.S. Department of Justice. (2020, February 28). Guide to disability rights laws. Civil Rights Division, U.S. Department of Justice. https://www.ada.gov/resources/disability-rights-guide/
- S. Government Accountability Office. (2025, April 29). Subminimum wage program: Employment outcomes and views of former workers in two states (GAO-25-106471). https://www.gao.gov/products/gao-25-106471
Ware, L. P. (2002). A moral conversation on disability: Risking the personal in educational contexts. Hypatia, 17(3), 143-172. https://org/10.1111.j.1527-2001.2002.tb00945.x
World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. https://cdn.who.int/media/docs/default-source/classification/icf/drafticfpracticalmanual2.pdf?sfvrsn=8a214b01_4&download=true
World Health Organization. (2023, March 7). Disability. https://www.who.int/news-room/fact-sheets/detail/disability-and-health
World Health Organization. (2022). Global report on health equity for persons with disabilities.
https://www.who.int/publications/i/item/9789240063600
Zhang, C. & Bennett, T. (2003). Facilitating the meaningful participation of culturally and linguistically diverse families in the IFSP and IEP process. Focus on Autism and Other Developmental Disabilities, 18(1), 51-59. https://doi.org/10.1177/108835760301800107

Outline
Week One: Foundational Concepts in Disability & Policy |
Overview
The purpose of this module is to create a shared understanding and language as related to disability and policy for this course. You can expect to learn about the socio-cultural background of disability in the United States and how the United States policy cycle functions. |
Objectives
|
Content
|
Readings
Education Deans for Justice and Equity. (2017, January). Public education, democracy, and the role of the federal government: A declaration of principles. National Education Policy Center. https://nepc.colorado.edu/publication/deans-declaration-of-principles Zaks, Z. (2024). Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future. Disability & Society, 39(12), 3233-3260. https://doi.org/10.1080/09687599.2023.2255926 |
Presentations
|
Suggested Activities
|
Additional Resources
|
References
|
Readings
Presentations
References
Americans with Disabilities Act. Pub. L. No. 110-325, 122 Stat. 3555, 3553 (2023). https://www.govinfo.gov/app/details/USCODE-2023-title42/USCODE-2023-title42-chap126-sec12102
American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). https://apastyle.apa.org/products/publication-manual-7th-edition
Alder, J. H., & Walker, C. J. (2020). Delegation and time. Iowa Law Review, 105, 1931-1993. https://doi.org/10.2139/ssrn.3423062
Altman, B. M. (2001). Disability definitions, models, classification schemes, and applications. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 97-122). Sage. https://doi.org/10.4135/978141297625.n4
APA Style. (2024, October). Disability. APA Style, American Psychological Association. https://apastyle.apa.org/style-grammar-guidelines/bias-free-language/disability#:~:text=Avoid%20language%20that%20uses%20pictorial,AIDS%E2%80%9D%20or%20%E2%80%9Cperson%20with%20a
Bagenstos, S. R. (2009). Law and the contradictions of the disability rights movement. Yale University Press. https://doi.org/10.1080/019476410033800328
Bailey, D. B., Jr., McWilliam, R. A., Aytch Darkes, L., Hebbler, K., Simeonsson, R. J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64(3), 313-328. https://doi.org/10.1177/001440299806400302
Barnes, C., & Mercer, G. (2003). Disability. Polity.
Baynton, D. C. (2001). Disability and the justification of inequality in American history. In P. K. Longmore, & L. Umansky (Eds.), The new disability history: American perspectives (pp. 31-57). New York University Press.
Ben-Moshe, L. (2020). Decarcerating disability: Deinstitutionalization and prison abolition. University of Minnesota Press.
Belt, R. (2022). Abelism. Center for Antiracist Research, Boston University. https://www.bu.edu/antiracism-center/files/2022/06/Ableism.pdf
Britannica. (2025, May 2). Ableism. https://www.britannica.com/topic/ableism
Bruder, M. B. (2010). Early childhood intervention: A promise to children and families for their future. Exceptional Children, 76(3), https://doi.org/10.1177/00144029100760036
Burkhauser, R. V., & Daly, M. C. (2011). The rise and fall of the disability employment gap: A comparative analysis of labor markets. Cambridge University Press.
Centers for Disease Control and Prevention. (2024, July 16). CDC data shows over 70 million U.S. adults reported having a disability [press release]. https://www.cdc.gov/media/releases/2024/s0716-Adult-disability.html#print
Centers for Disease Control and Prevention. (2025a, April 2). Disability and health overview. https://www.cdc.gov/disability-and-health/about/?CDC_AAref_Val=https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html
Centers for Disease Control and Prevention. (2025b, April 11). Disability, health, and well-being. https://www.cdc.gov/disability-and-health/health-well-being/index.html
Crenshaw, K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167. https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8
Conrad, P. (2007). The medicalization of society: On the transformation of human conditions into treatable disorders. Johns Hopkins University Press.
Congressional Budget Office. (n.d.). Processes. https://www.cbo.gov/about/processes
Congressional Research Service. (2011). A federal sunset commission: Review of proposals and actions (CRS Report no. RL34551).
Cook, G. C., & Odom, S. L. (2013). Evidence-based practices and implementation science in special education. Exceptional Children, 79(3). https://doi.org/10.1177/00144291307900201
Degener, T. (2017). A new human rights model of disability. In V. Della Fina, R. Cera, & G. Palmisano (Eds.), The united nations convention on the rights of persons with disabilities: A commentary (pp. 41-59). Springer Nature. https://www.doi.org/10.1007/978-3-319-43790-3_2
Doucet, F., & Tudge, J. (2007). Co-constructing the transition to school: Reframing the novice versus expert roles of children, parents, and teachers from a cultural perspective. In R. C. Pianta, M. J. Cox, & K .L. Snow (Eds.), School readiness and the transition to kindergarten in the era of accountability (pp. 307-328). Paul H. Brookes Publishing Co. https://www.academia.edu/67285601/Co_Constructing_the_transition_to_school_Reframing_the_novice_versus_expert_roles_of_children_parents_and_teachers_from_a_cultural_perspective
Duggan, M., & Imberman, S. A. (2009). Why are the disability rolls skyrocketing? The contribution of population characteristics, economic conditions, and program generosity. In D. M. Cutler, & D. A. Wise (Eds.), Health at older ages: The causes and consequences of declining disability among the elderly (pp. 337-379). University of Chicago Press.
Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636
Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10(2), 350–355. https://doi.org/10.1016/j.dhjo.2016.12.013
Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9(1), 39–46. https://doi.org/10.2322/JVR-1997-9106
Goodley, D. (2014). Dis/ability studies: Theorizing disablism and ableism. Routledge. https://doi.org/10.4324/9780203366974
Gonaver, W. (2019). The peculiar institution and the making of modern psychiatry, 1840–1880. University of North Carolina Press.
Gould, S. J. (1981). The mismeasure of man. W. W. Norton. 20last%2010%20years,disabilities%20into%20competitive%20work%20environments.
Government Accountability Office. (2017). GAO’s congressional protocols (GAO-17-767G). https://www.gao.gov/assets/gao-17-767g.pdf
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants & Young Children, 24(1), 6-28. https://doi.org/10.1097/IYC.0b013e3182002cfe
Hanson, M. J., & Lynch, E. W. (2013). Understanding families: Supportive approaches to diversity, disability, and risk (2nd ed.). Paul H. Brookes Publishing Co.
Hayes, J., & Hannold, E. L. M. (2007). The road to empowerment: A historical perspective on the medicalization of disability. Journal of Health and Human Services Administration, 30(3), 352–377. https://doi.org/10.1177/107937390703000
Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society, 12(3), 325-340. https://doi.org/10.1080.09687599727209
Iezzoni, L. I. (2011). Eliminating health and healthcare disparities among the growing population of people with disabilities. Health Affairs, 30(10), 1947-1954. https://doi.org/10.1377/hlthaff.2011.0613
Justia. (2025). Federal remedial legislation. https://law.justia.com/constitution/us/amendment-15/09-federal-remedial-legislation.html#:~:text=The%20Court%20concluded%20that%20Congress,examiners%20to%20register%20qualified%20voters.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press
Kayess, R. & French, P. (2008). Out of darkness into light? Introducing the convention on the rights of persons with disabilities. Human Rights Law Review, 8(1), 1-34. https://doi.org/10.1093/hrlr/nrgm044
Killion, V. L. (2022). Understanding federal legislation: A section-by-section guide to key legal considerations (CRS Report no. R46484). Congressional Research Service. https://www.congress.gov/crs-product/R46484
Klingner, J. K., Blanchett, W. J., & Harry, B. (2007). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blancher (Eds.), Handbook of developmental disabilities (pp. 55-73). The Guilford Press.
Lalvani, P. (2013). Privilege, compromise, or social justice: Teachers’ conceptualizations of inclusive education. Disability & Society, 28(1), 14-27. https://doi.org/10.1080/09687599.2012.692028
Ladau, E. (2021). Demystifying disability: What to know, what to say, and how to be an ally. Ten Speed Press.
Lewis, T. (2021, January 1). January 2021 working definition of ableism [blog post]. https://www.talilalewis.com/blog/january-2021-working-definition-of-ableism
Lise, J., Pastorino, E., & Pistaferri, L. (2023, November). Revisiting the employment of the Americans with Disabilities Act. Cowles Foundation for Research in Economics, Yale University. https://cowles.yale.edu/sites/default/files/2024-05/Pistaferri-paper_011123.pdf
Lombardo, P. A. (2022). Three generations, no imbeciles: Eugenics, the Supreme Court, and Buck v. Bell (Updated ed.). Johns Hopkins University Press.
McGerr, M. E. (2003). A fierce discontent: The rise and fall of the Progressive movement in America, 1870–1920. Free Press.
National Human Genome Research Institute. (2022, May 18). Eugenics and scientific racism [fact sheet]. https://www.genome.gov/about-genomics/fact-sheets/Eugenics-and-Scientific-Racism
Neumann, P. J., Ganiats, T. G., Russell, L. B., Sanders, G. D., & Siegal, J. E. (2016). Cost-effectiveness in health and medicine. Oxford University Press.
Null, S., & Trent, J. (2004). Mental retardation in America: A historical reader. NYU Press.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
Phillips, K. G., Houtenville, A. J., O’Neill, J., Katze, E. (2019). The effectiveness of employer practices to recruit, hire, and retain employees with disabilities: Supervisors perspectives. Journal of Vocational Rehabilitation, 51(3), 339-353. https://doi.org/10.3233/JVR-191050
Puar, J. K. (2017). The right to maim: Debility, capacity, disability. Duke University Press. https://doi.org/10.1215/9780822372530
Rainey Marquez, J. (2022, February 8). Wrestling with the legacy of eugenics [interview]. Georgia State University Research Magazine. https://news.gsu.edu/research-magazine/wrestling-with-the-legacy-of-eugenics-paul-lombardo
Rosenbaum, P., & Gorter, J. W. (2012). The ‘f-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457-463. https://doi.org/10.1111.j.1365-2214.2011.01338.x
Roulstone, A., & Prideaux, S. (2012). Understanding disability policy. Policy Press. https://doi.org/10.51952/9781447314493
Saturno, J. V. (2023). Introduction to the federal budget process (CRS Report no. R46240). Congressional Research Service. https://www.congress.gov/crs-product/R46240
Schweik, S. M. (2009). The ugly laws: Disability in public. NYU Press. https://www.jstor.org/stable/j.ctt9qgf13
Shakespeare, T. (2006). Disability rights and wrongs. https://doi.org/10.4324/9780203640
Simeonsson, R. J. (2006). Appendix C: Defining and classifying disability in children. In M. J. Field, A. Jette, & L. Martin, Workshop on disability in America: A new look (pp. 67-85). National Academies Press. https://nap.nationalacademies.org/read/11579/chapter/6
Steinfeld, E., & Maisel, J. (2012). Universal design: Creating inclusive environments. Wiley.
Stern, A. M. (2005). Eugenic nation: Faults and frontiers of better breeding in modern America. University of California Press. https://www.jstor.org/stable/10.1525/j.ctt1pn5jp
Stiker, H. (2019). A history of disability. University of Michigan Press.
Stone, D. (1985). The disabled state. Palgrave Macmillan.
Trent, J. W., Jr. (1994). Inventing the feeble mind: A history of mental retardation in the United States.
Turnbull, A. A., Turnbull, H. R., Erwin, E. J., Soodak, L. C., & Shogren, K. A. (2010). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (6th ed.).
UNICEF. (2021). Fact sheet: The world’s nearly 240 million children living with disabilities are being denied basic rights. https://www.unicef.org/press-releases/fact-sheet-worlds-nearly-240-million-children-living-disabilities-are-being-denied
United Nations. (2006, December 12). Convention on the rights of persons with disabilities. Office of the High Commissioner, Human Rights, United Nations. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
U.S. Department of Justice. (2020, February 28). Guide to disability rights laws. Civil Rights Division, U.S. Department of Justice. https://www.ada.gov/resources/disability-rights-guide/
- S. Government Accountability Office. (2025, April 29). Subminimum wage program: Employment outcomes and views of former workers in two states (GAO-25-106471). https://www.gao.gov/products/gao-25-106471
Ware, L. P. (2002). A moral conversation on disability: Risking the personal in educational contexts. Hypatia, 17(3), 143-172. https://org/10.1111.j.1527-2001.2002.tb00945.x
World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. https://cdn.who.int/media/docs/default-source/classification/icf/drafticfpracticalmanual2.pdf?sfvrsn=8a214b01_4&download=true
World Health Organization. (2023, March 7). Disability. https://www.who.int/news-room/fact-sheets/detail/disability-and-health
World Health Organization. (2022). Global report on health equity for persons with disabilities.
https://www.who.int/publications/i/item/9789240063600
Zhang, C. & Bennett, T. (2003). Facilitating the meaningful participation of culturally and linguistically diverse families in the IFSP and IEP process. Focus on Autism and Other Developmental Disabilities, 18(1), 51-59. https://doi.org/10.1177/108835760301800107

Outline
Week One: Foundational Concepts in Disability & Policy |
Overview
The purpose of this module is to create a shared understanding and language as related to disability and policy for this course. You can expect to learn about the socio-cultural background of disability in the United States and how the United States policy cycle functions. |
Objectives
|
Content
|
Readings
Education Deans for Justice and Equity. (2017, January). Public education, democracy, and the role of the federal government: A declaration of principles. National Education Policy Center. https://nepc.colorado.edu/publication/deans-declaration-of-principles Zaks, Z. (2024). Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future. Disability & Society, 39(12), 3233-3260. https://doi.org/10.1080/09687599.2023.2255926 |
Presentations
|
Suggested Activities
|
Additional Resources
|
References
|
Readings
Presentations
References
Americans with Disabilities Act. Pub. L. No. 110-325, 122 Stat. 3555, 3553 (2023). https://www.govinfo.gov/app/details/USCODE-2023-title42/USCODE-2023-title42-chap126-sec12102
American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). https://apastyle.apa.org/products/publication-manual-7th-edition
Alder, J. H., & Walker, C. J. (2020). Delegation and time. Iowa Law Review, 105, 1931-1993. https://doi.org/10.2139/ssrn.3423062
Altman, B. M. (2001). Disability definitions, models, classification schemes, and applications. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 97-122). Sage. https://doi.org/10.4135/978141297625.n4
APA Style. (2024, October). Disability. APA Style, American Psychological Association. https://apastyle.apa.org/style-grammar-guidelines/bias-free-language/disability#:~:text=Avoid%20language%20that%20uses%20pictorial,AIDS%E2%80%9D%20or%20%E2%80%9Cperson%20with%20a
Bagenstos, S. R. (2009). Law and the contradictions of the disability rights movement. Yale University Press. https://doi.org/10.1080/019476410033800328
Bailey, D. B., Jr., McWilliam, R. A., Aytch Darkes, L., Hebbler, K., Simeonsson, R. J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64(3), 313-328. https://doi.org/10.1177/001440299806400302
Barnes, C., & Mercer, G. (2003). Disability. Polity.
Baynton, D. C. (2001). Disability and the justification of inequality in American history. In P. K. Longmore, & L. Umansky (Eds.), The new disability history: American perspectives (pp. 31-57). New York University Press.
Ben-Moshe, L. (2020). Decarcerating disability: Deinstitutionalization and prison abolition. University of Minnesota Press.
Belt, R. (2022). Abelism. Center for Antiracist Research, Boston University. https://www.bu.edu/antiracism-center/files/2022/06/Ableism.pdf
Britannica. (2025, May 2). Ableism. https://www.britannica.com/topic/ableism
Bruder, M. B. (2010). Early childhood intervention: A promise to children and families for their future. Exceptional Children, 76(3), https://doi.org/10.1177/00144029100760036
Burkhauser, R. V., & Daly, M. C. (2011). The rise and fall of the disability employment gap: A comparative analysis of labor markets. Cambridge University Press.
Centers for Disease Control and Prevention. (2024, July 16). CDC data shows over 70 million U.S. adults reported having a disability [press release]. https://www.cdc.gov/media/releases/2024/s0716-Adult-disability.html#print
Centers for Disease Control and Prevention. (2025a, April 2). Disability and health overview. https://www.cdc.gov/disability-and-health/about/?CDC_AAref_Val=https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html
Centers for Disease Control and Prevention. (2025b, April 11). Disability, health, and well-being. https://www.cdc.gov/disability-and-health/health-well-being/index.html
Crenshaw, K. (1989). Demarginalizing the intersection of race and sex: A Black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167. https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8
Conrad, P. (2007). The medicalization of society: On the transformation of human conditions into treatable disorders. Johns Hopkins University Press.
Congressional Budget Office. (n.d.). Processes. https://www.cbo.gov/about/processes
Congressional Research Service. (2011). A federal sunset commission: Review of proposals and actions (CRS Report no. RL34551).
Cook, G. C., & Odom, S. L. (2013). Evidence-based practices and implementation science in special education. Exceptional Children, 79(3). https://doi.org/10.1177/00144291307900201
Degener, T. (2017). A new human rights model of disability. In V. Della Fina, R. Cera, & G. Palmisano (Eds.), The united nations convention on the rights of persons with disabilities: A commentary (pp. 41-59). Springer Nature. https://www.doi.org/10.1007/978-3-319-43790-3_2
Doucet, F., & Tudge, J. (2007). Co-constructing the transition to school: Reframing the novice versus expert roles of children, parents, and teachers from a cultural perspective. In R. C. Pianta, M. J. Cox, & K .L. Snow (Eds.), School readiness and the transition to kindergarten in the era of accountability (pp. 307-328). Paul H. Brookes Publishing Co. https://www.academia.edu/67285601/Co_Constructing_the_transition_to_school_Reframing_the_novice_versus_expert_roles_of_children_parents_and_teachers_from_a_cultural_perspective
Duggan, M., & Imberman, S. A. (2009). Why are the disability rolls skyrocketing? The contribution of population characteristics, economic conditions, and program generosity. In D. M. Cutler, & D. A. Wise (Eds.), Health at older ages: The causes and consequences of declining disability among the elderly (pp. 337-379). University of Chicago Press.
Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636
Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10(2), 350–355. https://doi.org/10.1016/j.dhjo.2016.12.013
Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9(1), 39–46. https://doi.org/10.2322/JVR-1997-9106
Goodley, D. (2014). Dis/ability studies: Theorizing disablism and ableism. Routledge. https://doi.org/10.4324/9780203366974
Gonaver, W. (2019). The peculiar institution and the making of modern psychiatry, 1840–1880. University of North Carolina Press.
Gould, S. J. (1981). The mismeasure of man. W. W. Norton. 20last%2010%20years,disabilities%20into%20competitive%20work%20environments.
Government Accountability Office. (2017). GAO’s congressional protocols (GAO-17-767G). https://www.gao.gov/assets/gao-17-767g.pdf
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants & Young Children, 24(1), 6-28. https://doi.org/10.1097/IYC.0b013e3182002cfe
Hanson, M. J., & Lynch, E. W. (2013). Understanding families: Supportive approaches to diversity, disability, and risk (2nd ed.). Paul H. Brookes Publishing Co.
Hayes, J., & Hannold, E. L. M. (2007). The road to empowerment: A historical perspective on the medicalization of disability. Journal of Health and Human Services Administration, 30(3), 352–377. https://doi.org/10.1177/107937390703000
Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society, 12(3), 325-340. https://doi.org/10.1080.09687599727209
Iezzoni, L. I. (2011). Eliminating health and healthcare disparities among the growing population of people with disabilities. Health Affairs, 30(10), 1947-1954. https://doi.org/10.1377/hlthaff.2011.0613
Justia. (2025). Federal remedial legislation. https://law.justia.com/constitution/us/amendment-15/09-federal-remedial-legislation.html#:~:text=The%20Court%20concluded%20that%20Congress,examiners%20to%20register%20qualified%20voters.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press
Kayess, R. & French, P. (2008). Out of darkness into light? Introducing the convention on the rights of persons with disabilities. Human Rights Law Review, 8(1), 1-34. https://doi.org/10.1093/hrlr/nrgm044
Killion, V. L. (2022). Understanding federal legislation: A section-by-section guide to key legal considerations (CRS Report no. R46484). Congressional Research Service. https://www.congress.gov/crs-product/R46484
Klingner, J. K., Blanchett, W. J., & Harry, B. (2007). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blancher (Eds.), Handbook of developmental disabilities (pp. 55-73). The Guilford Press.
Lalvani, P. (2013). Privilege, compromise, or social justice: Teachers’ conceptualizations of inclusive education. Disability & Society, 28(1), 14-27. https://doi.org/10.1080/09687599.2012.692028
Ladau, E. (2021). Demystifying disability: What to know, what to say, and how to be an ally. Ten Speed Press.
Lewis, T. (2021, January 1). January 2021 working definition of ableism [blog post]. https://www.talilalewis.com/blog/january-2021-working-definition-of-ableism
Lise, J., Pastorino, E., & Pistaferri, L. (2023, November). Revisiting the employment of the Americans with Disabilities Act. Cowles Foundation for Research in Economics, Yale University. https://cowles.yale.edu/sites/default/files/2024-05/Pistaferri-paper_011123.pdf
Lombardo, P. A. (2022). Three generations, no imbeciles: Eugenics, the Supreme Court, and Buck v. Bell (Updated ed.). Johns Hopkins University Press.
McGerr, M. E. (2003). A fierce discontent: The rise and fall of the Progressive movement in America, 1870–1920. Free Press.
National Human Genome Research Institute. (2022, May 18). Eugenics and scientific racism [fact sheet]. https://www.genome.gov/about-genomics/fact-sheets/Eugenics-and-Scientific-Racism
Neumann, P. J., Ganiats, T. G., Russell, L. B., Sanders, G. D., & Siegal, J. E. (2016). Cost-effectiveness in health and medicine. Oxford University Press.
Null, S., & Trent, J. (2004). Mental retardation in America: A historical reader. NYU Press.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
Phillips, K. G., Houtenville, A. J., O’Neill, J., Katze, E. (2019). The effectiveness of employer practices to recruit, hire, and retain employees with disabilities: Supervisors perspectives. Journal of Vocational Rehabilitation, 51(3), 339-353. https://doi.org/10.3233/JVR-191050
Puar, J. K. (2017). The right to maim: Debility, capacity, disability. Duke University Press. https://doi.org/10.1215/9780822372530
Rainey Marquez, J. (2022, February 8). Wrestling with the legacy of eugenics [interview]. Georgia State University Research Magazine. https://news.gsu.edu/research-magazine/wrestling-with-the-legacy-of-eugenics-paul-lombardo
Rosenbaum, P., & Gorter, J. W. (2012). The ‘f-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457-463. https://doi.org/10.1111.j.1365-2214.2011.01338.x
Roulstone, A., & Prideaux, S. (2012). Understanding disability policy. Policy Press. https://doi.org/10.51952/9781447314493
Saturno, J. V. (2023). Introduction to the federal budget process (CRS Report no. R46240). Congressional Research Service. https://www.congress.gov/crs-product/R46240
Schweik, S. M. (2009). The ugly laws: Disability in public. NYU Press. https://www.jstor.org/stable/j.ctt9qgf13
Shakespeare, T. (2006). Disability rights and wrongs. https://doi.org/10.4324/9780203640
Simeonsson, R. J. (2006). Appendix C: Defining and classifying disability in children. In M. J. Field, A. Jette, & L. Martin, Workshop on disability in America: A new look (pp. 67-85). National Academies Press. https://nap.nationalacademies.org/read/11579/chapter/6
Steinfeld, E., & Maisel, J. (2012). Universal design: Creating inclusive environments. Wiley.
Stern, A. M. (2005). Eugenic nation: Faults and frontiers of better breeding in modern America. University of California Press. https://www.jstor.org/stable/10.1525/j.ctt1pn5jp
Stiker, H. (2019). A history of disability. University of Michigan Press.
Stone, D. (1985). The disabled state. Palgrave Macmillan.
Trent, J. W., Jr. (1994). Inventing the feeble mind: A history of mental retardation in the United States.
Turnbull, A. A., Turnbull, H. R., Erwin, E. J., Soodak, L. C., & Shogren, K. A. (2010). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (6th ed.).
UNICEF. (2021). Fact sheet: The world’s nearly 240 million children living with disabilities are being denied basic rights. https://www.unicef.org/press-releases/fact-sheet-worlds-nearly-240-million-children-living-disabilities-are-being-denied
United Nations. (2006, December 12). Convention on the rights of persons with disabilities. Office of the High Commissioner, Human Rights, United Nations. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
U.S. Department of Justice. (2020, February 28). Guide to disability rights laws. Civil Rights Division, U.S. Department of Justice. https://www.ada.gov/resources/disability-rights-guide/
- S. Government Accountability Office. (2025, April 29). Subminimum wage program: Employment outcomes and views of former workers in two states (GAO-25-106471). https://www.gao.gov/products/gao-25-106471
Ware, L. P. (2002). A moral conversation on disability: Risking the personal in educational contexts. Hypatia, 17(3), 143-172. https://org/10.1111.j.1527-2001.2002.tb00945.x
World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. https://cdn.who.int/media/docs/default-source/classification/icf/drafticfpracticalmanual2.pdf?sfvrsn=8a214b01_4&download=true
World Health Organization. (2023, March 7). Disability. https://www.who.int/news-room/fact-sheets/detail/disability-and-health
World Health Organization. (2022). Global report on health equity for persons with disabilities.
https://www.who.int/publications/i/item/9789240063600
Zhang, C. & Bennett, T. (2003). Facilitating the meaningful participation of culturally and linguistically diverse families in the IFSP and IEP process. Focus on Autism and Other Developmental Disabilities, 18(1), 51-59. https://doi.org/10.1177/108835760301800107

Outline
Week One: Foundational Concepts in Disability & Policy |
Overview
The purpose of this module is to create a shared understanding and language as related to disability and policy for this course. You can expect to learn about the socio-cultural background of disability in the United States and how the United States policy cycle functions. |
Objectives
|
Content
|
Readings
Education Deans for Justice and Equity. (2017, January). Public education, democracy, and the role of the federal government: A declaration of principles. National Education Policy Center. https://nepc.colorado.edu/publication/deans-declaration-of-principles Zaks, Z. (2024). Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future. Disability & Society, 39(12), 3233-3260. https://doi.org/10.1080/09687599.2023.2255926 |
Presentations
|
Suggested Activities
|
Additional Resources
|
References
|
Readings
Presentations
References
Americans with Disabilities Act. Pub. L. No. 110-325, 122 Stat. 3555, 3553 (2023). https://www.govinfo.gov/app/details/USCODE-2023-title42/USCODE-2023-title42-chap126-sec12102
American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). https://apastyle.apa.org/products/publication-manual-7th-edition
Alder, J. H., & Walker, C. J. (2020). Delegation and time. Iowa Law Review, 105, 1931-1993. https://doi.org/10.2139/ssrn.3423062
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